As soon as I posted that I was back, reality said, “Yes you
are and I’m taking advantage of it.” Since getting back from New Mexico, we
have been hitting the ground running, not as fast as was planned at first, but
running nonetheless. Ok maybe a jog,
headed into a run, as Hayden and I recovered from some pretty nasty infections.
I had strep throat and a horrible sinus
infection; he had a double ear infection and a horrible sinus infection with a
croup-like cough. You can hopefully see
why it’s taken me so long to get back – this was tough to bounce right back
from, especially when you add jet lag.
My little man is still recovering and may be relapsing. He started spiking a fever today and doesn’t
want to eat or drink or take Tylenol. I can’t blame on the Tylenol because he has
been on some pretty serious stuff that I’m sure tasted awful – a steroid and
the thickest antibiotic I have ever seen for a child. We ended up hiding it in his Danimals
smoothies that he drinks. Luckily for
us, he drinks them quick and completely.
It was a struggle with meds this time around. The most bizarre thing is that Tylenol was
never in that group, nor was the antibiotic, but now he is group them all into
one category.
It is amazing how their little minds work. I wish I could see what is going on in
there. He recalls things I would never
remember, if it weren’t for him. Now
mind you he still isn’t talking, not much has changed on that front, but once I
figure out what’s going on and I realize it’s because of something that
happened before, my mind is blown.
If I am really honest, this child blows my mind every
day. I think he is severely
underestimated for what he knows and can do because of his lack of verbal
communication. I am with him every day
and have just started realizing some things myself. For example – letters of the alphabet.
Awhile back his TSS and I decided to start an activity with
him called a letter of the week box.
Each week would feature a new letter of the alphabet with different
items starting with that letter, activities, etc. the purpose was to teach him the letters of
the alphabet and recognize them. What we
found out was that he already knew them, EVERY letter. I can’t tell you when this happened or how,
but he knows them. We (meaning my
husband and I, his TSS, his teachers, his therapists, etc.) work with him on
many things and at some point he picked up on what the alphabet was and each
letter in it.
This is where special needs children can blow your mind if
you let them. Instead of individuals
looking at them for what they lack, I hope they look at them for what they are
and what it is that they excel at. I’ve really had my mind opened. I can admit that I wasn’t as open as I should
have been and I’ve made a vow to be better, which is the best an y of us can
do. Once I made that vow and started
paying attention, it was like a whole new outlook on things came forward. I was looking at everything differently,
things I’d been doing or experiencing and seeing my whole life changed. It was amazing.
I credit my son for
making me a better. I’ve changed a lot
since he’s come into this world and even He helped me change, now I want to
fuel others to change.
As I wrap this up, think about what you could do in your
life to change. It could be anything,
believe me the list is endless. I still have lots to adjust. I challenge you to start looking at yourself
and make a change. This is the essence
of the be the change movement. If we
change ourselves, we can change the world!
Always,
Sheri
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